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A doting father has shared what life resembles for his eight-year-old boy who lives with one of the rarest congenital diseases on the planet. Karl King, 53, of Sandiacre, is dad to Zacharia, eight, who was detected with a ‘SMILE’ condition in 2018 after 5 years of tests. The disorders are uncommon genetic conditions with severe life-limiting effects. There are believed to be less than 20 cases diagnosed in the UK and less than 100 around the world. The disorder impacts the gene referred to as Grin, which is accountable for the learning and memory part of the brain. Cases are categorised into one of 7 Smile genes – Zacharia is a Grin1 kid. The disorder comes from missense anomalies where a single letter is “misspelled” among the 3.2 billion letters of human DNA. The majority of cases are not believed to be acquired from parents. There is presently no remedy and minimal research study on Smile conditions. Mr King, who deals with kids with impairments, said: “We understood when Zach was around four months old that he had troubles however it took a long period of time to get answers. “The very first 6 years was simply a guessing video game, going for multiple different tests and MRI scans. “When we did lastly get the diagnosis, there was a lot of grief but then when we began to discover other individuals, it was a genuine lifeline to understand we weren’t alone.” Through online forums, Zacharia’s family had the ability to discover more about his condition by sharing their experiences. Nevertheless, while there are some resemblances, every kid with a Smile disorder is entirely various. Mr King said:” Zacharia takes 12 various kinds of medication a day for numerous issues. He suffers from seizures and he is very emotional. “He does take pleasure in the sensory locations we have in your house. He likes brilliant lights and he definitely likes any kind of motion, so going on a swing always has him in hysterics. “However I believe as he gets older, the aggravation for him grows due to the fact that he can’t communicate how he feels. “While I comprehend when individuals state they would never change their children, the fact is this is no one’s dream for their kid. “Zach requires full-time care, he has no understanding of his environments – he resembles a nine-month-old infant. And what takes place when we go?” The household have been supported by social care which means they can permit more time for their youngest kid, Gabriel aged 2, and Zacharia still gets the attention he needs. Both Karl and his better half, Anna, 41 work full-time which likewise contributes to the pressure. He added: “We work opposite shifts so it does typically seem like we’re single moms and dads and it can be tough but we try to believe in weeks, and constantly have things to eagerly anticipate.” While Smile disorder is still so unusual, the number of detected cases is rising every day as there is more awareness for the condition. Next month, Zacharia and his household will be meeting other UK Smile families for the very first time at Twycross Zoo in Tamworth. Jillian Hastings-Ward from Bristol is a board member for the Treatment Smile foundation and has a special connection with the King family. She said: “My boy, Sam has exactly the exact same GRIN1 gene version (‘spelling error’) as Zach so it will be actually intriguing to fulfill him soon. “I’m thrilled about the meet-up because it’s the very first time that more than 2 UK GRIN households will ever have remained in the very same place at the very same time. “Two years back, my family had to go as far as a conference in the Netherlands to find another 6 GRIN families, and now we have this lots of within a 150-mile radius of each other. “I believe this is a huge leap forward because of the enhanced rates of medical diagnosis, social networks making it much easier for newly detected families to discover each other and build support networks and also the increasing awareness for GRIN gene conditions.” from https://taxi.nearme.host/dad-describes-boys-rare-congenital-disease-which-affects-less-than-100-people-around-the-world-nottinghamshire-live/
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Campaigners have posted leaflets through letterboxes in Blaby setting out 15 reasons to oppose a gypsy site in the village’s conservation area. The flyers – which show a map of the site and give details of how to object – landed on door mats of properties in the town shortly after an application to put two gypsy pitches on land near to Bouskell Park was submitted. They have also been displayed in the village. An application asking for permission to site three pitches on the same site was withdrawn without reason at the end of last year. More than 830 objections were received in relation to the original plan and hundreds of people attended a meeting about the application. The leaflet reads: “If you have concerns about this application please make your voice heard by objecting. “Below is a list of possible objections, please bear in mind objections MUST be made in your own words.” It goes on to warn villagers: “Blaby District Council has zero tolerance for abusive and/or offensive language.” There is nothing on the leaflet to suggest who it was written or distributed by. Copies of it have also been pinned to lampposts, notice boards and railings near to the site and in the town centre. The 15 reasons listed on the flyers are: Read MoreLatest news from BlabyThe Blaby District Council website shows that nearly 600 comments have been made online about the new application. What’s happening in your areaThe applicant, Martin McDonagh, is asking for permission to site two pitches, each with room for a mobile home, touring caravan and day room. Mr McDonagh is seeking planning permission for the permanent day buildings “to meet a recognised need for such facilities in the area to facilitate a gypsy lifestyle”. The planning statement also addresses an enforcement notice that was placed on the site after protected trees were removed without prior permission. The landowner, Arthur Oliver McDonagh, was told he had until January 31, 2020 to plant the trees. The agent’s statement says: “The applicant intends to carry out the tree planting in compliance with the Tree Replacement Notice dated 7th June 2019. “The application proposes that all the required trees are planted, but the positions of one of these trees are slightly relocated to accommodate the development. “The proposal incorporates one mobile home, one touring caravan, and one day room per pitch. The day rooms are positioned so that they are outside the root protection areas of the trees. “The day rooms have been designed to be finished with high quality materials that are in keeping with the surrounding residential properties.” from https://taxi.nearme.host/leaflet-put-through-village-letterboxes-lists-15-reasons-people-should-oppose-gypsy-site-plan-leicestershire-live/ SINGAPORE (THE SERVICE TIMES) – Indonesian super-app gamer Gojek is refuting a report that it is holding talks on a potential merger with Grab, a spokesperson informed Business Times on Tuesday (Feb 25). Earlier in the day, The Info reported that the two decacorns are holding talks on a prospective merger, although roadblocks remain to working out how control of the combined firm will be split. “There are no prepare for any sort of merger, and recent media reports concerning discussions of this nature are not precise,” the Gojek spokesperson stated. Get decreased to comment. According to The Details’s report, which pointed out individuals knowledgeable about the matter, both companies’ management teams have actually had major conversations about a potential merger in the previous few months. In early February, Grab president Ming Maa and Gojek president Andre Soelistyo were said to have actually participated in the current conversation. Nevertheless, a significant point of contention is said to lie in who will manage the combined entity. The Info reported that Gojek does not desire its operations to be taken in into Grab. On the other hand, Grab apparently informed its significant investors that Gojek desires an offer where its shareholders would own half of the companies’ combined Indonesian operations. Nevertheless, Grab is said to be seeking control of the combined entity, consisting of the Indonesian operations. In addition, the deal might face regulatory examination, considered that Grab’s earlier acquisition of Uber’s South-east Asian service was found to have violated Singapore’s anti-competition laws. Talk of a prospective merger comes as both Grab and Gojek continue to raise hit funding rounds, while there is little clearness on their course to success. In the most recent investment, Grab raised more than US$ 850 million (S$ 1.19 billion) from Japan’s Mitsubishi UFJ Financial Group (MUFG) and TIS Inc to bankroll its growth into monetary services in the region, Bloomberg News reported. The sum consists of US$ 706 million from MUFG, Japan’s biggest bank, and US$ 150 million from TIS, a company of information centre and cloud services, according to joint statements from the business on Tuesday. Grab, backed by SoftBank Group, has actually been expanding into monetary services, building on its ride-hailing, food shipment and e-wallet offerings in an effort to become a one-stop shop for on-demand services in the region. The business will co-develop monetary products and services for the region with the 2 financiers, Get president Ming Maa stated in a declaration. The financial investments demonstrate “their self-confidence in Grab’s super-app strategy and our ability to build a sustainable long-term business,” he said. We have been experiencing some issues with subscriber log-ins and apologise for the trouble triggered. Until we solve the concerns, subscribers require not log in to access ST Digital short articles. However a log-in is still needed for our PDFs. from https://taxi.nearme.host/gojek-denies-report-on-merger-talks-with-grab-companies-markets-news-top-stories-the-straits-times/
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For most of his adult life, Nate Taylor-Steedman has been involved in dancing. The 32-year-old from Hinckley has never really been one for the traditional forms of dance and never enjoyed ballet or tap. When he was 18 he was employed as a stage and podium dancer in nightclubs. But the culture surrounding the job meant that he and dance began to drift apart. “I’ve been dancing my whole life,” he said. “I was a podium and stage dancer when I was 18 and did that for five years or so. “But as you can imagine it wasn’t the nicest and the nightlife wasn’t that friendly, so I gave it all up.” He took four years out of dance after he said he had “fallen out of love” with it. But when he met his now partner, Harry Underwood, in 2014 that all changed as he discovered burlesque. “He introduced me to musical theatre – and from that, we set up our own dance company,” Nate said. “In 2016 I performed at my friend’s show, I just thought why not try something different – and I fell in love with it. “The acceptance in the room made me feel so at home.” And after performing at that show in a circus-like arena, his character Nate St Nate was born. Donning white face paint, a red nose, clown-esque clothing and a white ruff, his act is not what you would come to expect in burlesque. The world ‘burlesque’ derives from an old Italian word ‘burla’ which means to joke or mock. So it’s fitting that Nate’s act does exactly that instead of the more sensual and seductive performances people might expect from burlesque. One night in February last year he said he discovered the Seren Yn Codi a well-respected burlesque competition in North Wales. After the discovery, he saw that they were taking applications. Three months before the deadline for applications closed the 32-year-old was told that he had made it through to the semi-finals in November. Read MoreStories to make you smile“I was one of only two males who had got through to the semi-finals,” he said. “Me and my family travelled up there and I was mostly scared, I’m pretty self-conscious about it. “There was some crazy stuff, the competition was outstanding. “They announced the audience choice award and I was called up on stage for that which was absolutely amazing. “And when they got to to the gold award, they turned round and said my name, I had to stop myself from throwing up on stage. “My partner threw his pint on the people in front of him. “I didn’t realise that I had made history.” Nate had become the first male to ever win the gold award and the first male to win two awards. “It has been an absolute whirlwind,” he said. “Discovering Burlesque has been such a massive comeback for me. “To find a place that doesn’t judge me because I’m a boy that doesn’t always act as a boy has been amazing.” Nate continues to run his dance company, The BEATZ, with his partner and is planning on performing at more burlesque shows in the near future. from https://taxi.nearme.host/ex-podium-dancer-who-fell-out-of-love-with-performing-makes-history-in-uk-burlesque-competition-leicestershire-live/ One visitor gushed on TripAdvisor: “I have invested hours appreciating the architectural beauty of the NatWest hole. Another composed: “Having been fortunate to take a trip to many locations throughout the world, this has to be one of the finest examples of a circular hole I have actually seen. And did he take a trip from Awsworth to look upon the hole? from https://taxi.nearme.host/a-hole-in-the-wall-outside-a-natwest-bank-has-ended-up-being-one-of-the-most-popular-attractions-for-one-town-nottinghamshire-live/ “Where are you from?” It’s a question that for many can seem like a good ice-breaker, especially when you’re in a cab and are dreading a silent ride. But it can be a loaded question that can cause discomfort and even pain for some of the people behind the wheel. “Some people ask it because they’re curious, but many people they ask it to make fun of you, like you’re not Canadian because you speak with an accent,” said Hazem Alasmar, a cab driver in London, Ont. “It touches my heart.” “I say I’m Canadian, and I’m not lying, but they say ‘no, you’re not because you weren’t born here.’ So is this the judgment? If you’re not born here, you’re not [Canadian]?” “I’m proud of my roots and everybody came here from somewhere, but we are all Canadian. People shouldn’t be judged by their accents or anything else,” he added. Alasmar says that if the passenger is nice and they’ve established a rapport, he doesn’t mind answering that he is Palestinian. “But not when they get in the car and right away ‘From where are you?’ “How long have you been in Canada?'” A painful responseShideh Abdi, who’s been driving a cab for more than a decade, says the question is private. How a passenger responds can be hard for her to hear. “When I say my nationality, they think of terrorists, because right now my country is in a bad situation,” explains the Iranian woman. Abdi says sometimes passengers stopped talking right away when she tells them. “I can see their faces change and I know what’s happened … I’m hurt.” “I love my country, but right now the situation is very bad and I don’t want people thinking the people are bad,” she added. Abdi hopes people realize that oftentimes those who immigrate are doing so because of problems in their homeland. “What can I do? I can’t change my country.” Broken recordFor Salem Al-Fuady, who’s been behind the wheel of a cab for 20 years, the question is asked so often he’s annoyed by it. “It’s like a song, when you hear it a lot, you get sick of it,” he said. For him, the worst experience is when he picks up passengers who are intoxicated and they start asking it. “You know they are not interested in you,” he said. “I’ve made up a lot of countries because I came from a war-zone, and most people don’t know what’s going on and they start asking rhetorical questions.” Al-Fuady says he hopes people will get to know him first before diving into questions about his past. There’s always the weather!
Cabbie Confidential is a CBC London series that asks the men and women who know our city streets the best to “tell all” about what they see on the roads, who they meet and some of their hopes for this city.
from https://taxi.nearme.host/this-is-the-question-you-should-stop-asking-your-taxi-driver-cbc-news/
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Moms and dads who claim Universal Credit might claim back a massive ₤ 1,000-a-month through the scheme. The Department for Work and Pensions (DWP) has stated that up to 85 per cent of childcare expenses – worth as much as a maximum of ₤ 646 each month for one child, or up to ₤ 1,108 per month for two or more kids – can be claimed back. To learn if you are eligible and begin a claim, moms and dads are recommended to should call their jobcentre work coach and supply details that consist of the name, address and registration number of your childcare service provider and the complete costs of their childcare. Childcare support is paid in arrears– this indicates parents will pay the costs upfront themselves and Universal Credit will then pay the cash back, reports ChronicleLive. The DWP says anyone who struggles to manage the in advance expense can get aid with the flexible support fund, by asking their work coach how to use. Moms and dads can declare for child care expenses for the month prior to they start work if they have actually accepted a task offer. If moms and dads alter job, they must inform the DWP immediately as support with child care expenses can be claimed for a minimum of a month after work ends to help preserve child care as they move in between jobs. Minister for Well-being Shipment Will Quince stated: “Any working parent can value the troubles of having to stabilize a task with taking care of the kids, and I wish to make it simpler for parents who wish to return to work after having children. “With Universal Credit, child care payments are far more generous than the old advantage system. For lots of people childcare expenses can be a barrier to going back to work, but I want moms and dads to understand that help and support is offered.” To see if you’re qualified for over a thousand pounds a month to assist with child care, go to www.understandinguniversalcredit.gov.uk The Universal Credit child care deal becomes part of the package of assistance available for moms and dads, which might include complimentary childcare for 15 or 30 hours a week. from https://taxi.nearme.host/universal-credit-parents-could-claim-back-more-than-1000-a-month-in-childcare-costs-leicestershire-live/ Meet the Kings Mill Medical facility staff who keep the wards 100 percent tidy Nottinghamshire Live2/25/2020 Nicola states the job is a lot more specialised than people would believe. She said: “In the early morning I’ll set my trolley up, get my mops and my chemicals, and follow the sheet for each ward. “Theatre cleansing is bleach and water, so it’s a different sort of tidy”, she stated. from https://taxi.nearme.host/meet-the-kings-mill-medical-facility-staff-who-keep-the-wards-100-percent-tidy-nottinghamshire-live/
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A newly-wed identified with an unusual form of cancer has revealed the heartbreak of facing his life being “pulled away” before the age of 30. Nathan Brown, 28, saw he was having a hard time to swallow food about 2 years earlier and visited his GP for assistance. Tests later on revealed he had phase three esophageal cancer. The software engineer, from Sutton-in-Ashfield, went through chemotherapy and radiotherapy prior to the tumour was surgically removed, alongside the bulk of the wind pipeline itself. He also had surgical treatments on his stomach. However after months of recovery, a new lump grew on his neck and tests exposed his cancer had actually moved into his lymphatic system and, in turn, into his lungs as a stage four, terminal health problem. Nevertheless, the positive engineer did not let the cancer beat his spirits, continuing with work up until he could physically no longer do it – and up until his bosses and healthcare specialists recommended he must stop. Nathan states his initial reaction to medical diagnosis was to think of how he would break the news to new spouse Keely – who he married in April – before instantly turning his mind to how he might beat the disease. He stated: “It’s a heartbreaking moment. At that age you do not actually understand what to think. You find out about cancer but you do not know a lot about it. For the very first 30 seconds or so later on, I was thinking all about how I will inform Keely and how I can endure this. “She has been great throughout all of this, she is my rock. I honestly think she has a stronger spirit than me regardless of it all, and I’m so blessed to have her by my side. “With it all, from diagnosis to treatment, we’ve been through it together, and I truly require to make our time together last as long as it should.” In spite of preliminary radiotherapy, chemotherapy and a number of scans to deal with the illness, Nathan’s cancer has actually spread even more into his lungs – though his condition has actually stabilised thanks to a lifestyle modification. Through keeping himself healthy and keeping track of both his drug and food intakes, Nathan says he’s in the “finest shape of my life” – and is motivating other members of his friends and family to look after their bodies following his medical diagnosis. He is likewise planning to release a blog in the coming months, recording his experiences with cancer. This is something he thinks everybody with cancer or major health problems ought to consider. He said: “I am in the finest shape of my life, however I still have problems. I can’t swallow appropriately, I do not have an active digestion system and I actually have problem with sleeping, but overall it’s made me a lot healthier and I have actually seen that individuals around me are altering lifestyle routines to avoid possible cancers themselves. “I have actually seen recently that when I talk to my friends and family about the different types of healthy foods I consume, those like turmeric which help in reducing cancer, they really start to listen and they’ll tell me they’ve started following this recommendations. “Since I was detected I have actually composed whatever down and I will take bits to develop into a blog in the future, due to the fact that I believe if everyone who had a terminal or severe health problem documented their experiences, public understanding on living with cancer would be so much better.” The main concern for Nathan and Keely is that the treatment for Nathan’s cancer is not offered in the Britain. To get complete treatment for his kind of esophageal cancer, consisting of access to brand-new drug Nivolumab and what is referred to as Dendric Cell Treatment, he will need to travel to Germany. So to assist fund the treatment, the newlyweds have actually set up a ‘conserve my life’ fund online as they want to raise up to ₤ 80,000, which would money the preliminary treatment phase, access to brand-new drugs and to support Keely taking some time off work to go to treatment sessions. Nathan said: “For me to have a chance in eliminating this ghastly illness for great I need this treatment. My oncologist has informed me it might be usable in the UK within the next couple of years but, as time is very much of the essence, I require it as soon as possible. “I’ve spoken to someone who has actually donated to the fundraiser who actually went through the same treatment himself. It made him cancer complimentary, and now he wants to assist me receive it too.” Nathan has actually been accepted for the treatment, and he can contact the clinic in Frankfurt to start as soon as an initial ₤ 30,000 has been raised. from https://taxi.nearme.host/newly-wed-exposes-the-heartbreak-of-facing-stage-4-cancer-at-the-aged-of-just-28-nottinghamshire-live/ Cab driver goes out of his method to conserve a 92-year-old woman from being scammed out of $25000.2/23/2020 Rajbir”Raj “Singh, the owner of Roseville Taxi in northern California, is being hailed as a hero for assisting a 92-year-old female from being scammed out of $25,000. Singh selected up the lady at Sun City, a retirement community, and she stated she was going to the bank to get $25,000 to settle a debt with the Irs. “This sounded extremely suspicious to Raj so he suggested to the woman, this may be a fraud,” the Roseville Police Department said in a Facebook post.But the woman didn’t believe that Raj’s suspicions held true. So he called the variety of the male who was impersonating an IRS representative and asked, “‘Do you understand this girl?” The man stated he did not. “I understood something was wrong,” Singh said.Singh states the male on the other end of the line appeared nervous and, after repeated calls, blocked his number.The female still didn’t believe Singh.”Raj pleaded with the lady to reevaluate so they accepted stop by the Roseville Authorities Station to ask an officer,”the police department said.When the officer at the Police headquarters described the situation to the lady, she lastly believed it was a scam.” We like this story because a number of times throughout, Raj might have simply taken his client to her stop and not stressed over her wellness,”Roseville authorities stated.”He took time from his day and had the great planning to bring the almost-victim to the police headquarters for an official reaction.”In a statement, the Roseville police said Singh was worthy of a” fantastic person award.” “His fast thinking saved an elderly person $25,000 and for that, we significantly value his efforts,”cops said. The law enforcement officer later asked Singh to go to the station where he was granted a$50 present card for his efforts.< img data-rm-shortcode-id="NIBS3Y1582160708"data-rm-shortcode-name= “rebelmouse-image”lazy-loadable =” real “src =”https://assets.rebelmouse.io/eyJhbGciOiJIUzI1NiIsInR5cCI6IkpXVCJ9.eyJpbWFnZSI6Imh0dHBzOi8vYXNzZXRzLnJibC5tcy8yMjc3ODM4NC9vcmlnaW4uanBnIiwiZXhwaXJlc19hdCI6MTYwMzYxNTgyOH0.4szxqfP6SM1uMCyKaYG6s9ynL9qwNBv1IJAyE8FtSkI/img.jpg?width=980″> by means of City of Roseville, California Authorities Department According to the Federal Trade Commission’s Bureau of Customer Security, government-impostor frauds have actually reached the “highest levels we have on record.” In the past 5 years, the FTC has actually received 1.3 million reports of government-impostor scams.Six percent of those reported resulted in somebody losing money.The most popular type of government-impostor scammers claim to be from the Social Security Administration or the Internal revenue Services. The calls often sound like this:” The factor you have actually gotten this phone call from our department is to notify you that there is a legal enforcement action submitted on your Social Security number for fraudulent activity so before this matter goes to the state courthouse and prior to you get detained if you require any details or have any concerns kindly call us back at … “More youthful people are most likely to succumb to these kinds of rip-offs. However, those who are 80 and older report the highest typical loss of around $2,700 per fraud. from https://taxi.nearme.host/cab-driver-goes-out-of-his-method-to-conserve-a-92-year-old-woman-from-being-scammed-out-of-25000/ |
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